Well, what a day.
Unfortunately no internet as I think the gales blew the place
apart! Tiles off the roof crashing into
the garden, windows trying to turn themselves inside out and concerned patients
screaming at the thunder and lightning! L
Apart from that, a calm day in the unit, still mostly on
holiday but I had my first Psychiatrist session this morning! 5 minutes after starting she said maybe the
hour had been enough for me the first time………….AN HOUR???? Wow, time dilation! Yes dear fellow FNDers, as you know, I talk
too much! J (but really do wish I could remember her
name!). :-)
Ooooo, someone found a cushion for my wheelchair………yes, they’ve
allowed me to borrow a real, live, SELF-PROPELLED one. So my greatest wish these last 8 months for “Independence”
has finally been granted!!! Now my next goal is to get out of it!J (Though think I’ll wait a few days longer
until my balance has totally come back).
We are managing to enjoy each other’s company, compare
notes, thoughts, experiences and symptoms of our own FND. All finding insight and recognition of previously
unrealised common issues. The main help
is we laugh together, appreciate our common experiences and acceptance of our
symptoms in each other. If I’m in a
seizure the conversation just continues on and I join back in when I can. So
much better than hearing an awkward silence as the people around you are unsure
what to do.
I had my first shower here this morning AND a shave now I have
my razor. 3 weeks growth fell away in
10minutes. And I managed to have my room
furniture moved around so am a lot more comfortable and in a roomier room.
Shame it took me 7 members of staff to go through to arrange it though. J (I have to keep
reminding myself, this IS the NHS)!
And so another day comes to a close, feeling more settled,
happier and confident this can work!
Sweet dreams to all and to all a good night.
PS Internet is back, so posting now.
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