So anyway, here is what should have gone up before I was discharged:-
The Lishman Journal - Day 79 (Thursday 20 March)
“I know, I know, it’s been a long time since
my last blog and I do apologise to those interested in coming here. The last couple of weeks have been pretty
intense and I’ve been unable to concentrate enough to write. Also the end of my time here has raised some
issues both for me and for the unit itself, particularly in timing. I have been unfortunate to encounter “end of NHS
year” holiday entitlements being taken at just the time when I most need the
therapy and support to understand myself and this condition more. It’s difficult to explain, even to myself,
but the light dawns very late in the process and that is when the questions
start and need to be answered. Those
going through CBT may well understand where this is coming from, maybe not, but
all I can say is it’s an amazing experience to go through!
Many great and interesting things
have happened here during these last couple of weeks, but for the life of me I
cannot remember them so will have to wait for help from the others, especially
Leoni with use of her daily diary!
Tomorrow I have an away-day
afternoon back to Frimley Park hospital for a couple of Eye clinic appointments
and on Saturday an investigation at Kings into why my feet and ankles are
swelling so much. Apparently this Echo
was arranged for LAST Saturday, but Kings found it difficult to phone here,
writing instead to me at the unit and this letter arrived, somewhat tardily,
just yesterday (Wednesday)! J
It is a somewhat sad week also as
we have lived together as a group for some time now and relationships grow
quite intense in such a situation. One
of the “old timers” left for pastures new this morning and I’m sure his
presence will be missed, as will mine next week (or not! J). However this is also a time where the group
dynamics change and the therapeutic value of peer relationships become more
obvious to those taking a more active role.
I’m sorry this is a more sombre
tome, it is hard for me to realize that oh so soon I shall be returning to a
life that has to be modified to enable me to live an FND-free (minimized?)
life. Also Dave T has once more had to
make a trip to Kings A&E to check out a wrist injury from this
morning. He gets withdrawal symptoms I
believe, as he was there just last Monday after having a seizure in the street
coming back from Camberwell. I understand
his request for an Air Ambulance ride was unsuccessful, but he had a road
ambulance PLUS a paramedic car attending him whilst being just some 100 metres
from the A&E entrance!!!! J”........................
I will write again about my
discharge and what has happened since then, but for now I shall post this and
regain some composure for the rest as I am currently finding any dealings with
FND to be terribly difficult, possibly due to the realization that my continuing
speech issues and seizures may well be the best they ever will be………….I hope
for better, but expect the worst………
My very best wishes to you all
and I promise to return just as soon as I can to all my friends on
Facebook. I am aware that many of you
have sent me good wishes and messages. I
apologise for my lack of response to all these and hope you will bear with me
at this time. I am finding this "return to normal life" a very difficult time but for any of you awaiting your induction into the Lishman unit, or thinking of asking for a referral there, please DO go and see how they can help YOU!
