And so we are half way through
the weekend again. Very few of us here,
both Dave’s gone home and 3 of the ladies also.
Lovely Annie was held until
Thursday before being allowed to escape after her 8 days of Telemetry, but I must say it was a good thing because she was in a frame of mind on Monday and Tuesday where I feel she might not have come back. We all
so hope it gives her consultant the necessary information to progress her treatment and help provide the right pathway for her. Her skin and hair have suffered and I think
she was heading for the longest soak ever recorded in a bath full of scents and
moisturisers!
My Thursday shopping trip was cancelled
due to rain. Instead I spent a lovely
hour drinking Earl Grey tea and sorting through hospital cameras with my lovely OT! Picked out a nice Canon 400D DSLR to play
around with and had high hopes to rediscover my photographic bent (hush now,
none of that!)………….then found the Compact Flash memory card was missing and
there is no internal memory! So turned
my newfound technical capabilities to getting the ward printer working again,
as I came across the correct lead, only to find the ink cartridges are empty
and dry, only one computer operates and it is the one WITHOUT internet access! Methinks it has been a long,
long time since anything worked around here! Am hopeful of buying replacements for
all three items next week when the OT comes back in and can use the Ward Debit
Card and have been promised she'll chase the hospital IT department to supply the replacement computers, apparently promised many moons ago! J
My dearest Leoni is in constant
discomfort owing to a severe lack of bowel movement, due no doubt to the
morphine she needs to live on (to say nothing of the food issues). Despite days of all the usual medications to assist,
nothing worked and so arose the spectre of the dreaded ENEMA. We, of course, helped minimise the drama of
such an occurrence (honestly, we DID!!!), but to her great relief pessaries
were prescribed instead, with a proviso that if 5 days does not produce the
desired results, the E word would come back to haunt her. I reckon, even if the pessaries do not work
entirely, the spectre of what is to come will SCARE the s*** out of her on that
last day!!! J
I have to report, with great
pleasure, a first…..NO SEIZURES today!!!
Nearly went off on one during dinner when an alarm going off combined
with noise, lights and certain annoying personal habits (not going into detail!),
but managed to remain “in the room” and it’s passed again. Fingers crossed I can manage through until
bedtime.
My Saturday morning started poorly
due to being awoken by what my brain, incorporating it into a dream, told me was a vibrator (please don't ask why!!!)……………turned out to
be Ed using his newly acquired electric razor!!! I dozed a while, then thought groggily, “Hmmmm, where’s my
morning dose of Loperamide”? Decided to
rouse myself, got up and checked the time…………8:15!!!! Well past breakfast and no call for that
either. Stumbled into the dining room propping
my eyelids open to find 2 others also looking bewildered as there was no toast
or tea. It was 8:30 before things
started moving and I had my usual single piece of toast with marmalade as there was
no alternative beans or spaghetti (yes, honestly, that IS the norm here!)……………………..08:45, nurse comes up and says “oh, would you like some
scrambled egg before it’s thrown away”? Errrmmm, excuse me, scrambled egg??!!! Bit b***** late to offer now! What a waste, yet again, all thrown into a plastic
sack and dumped! Is it REALLY so hard to
tell us what’s on the menu??? (Apparently yes it IS) L
I think that perhaps, as I get
more cognitive function back, the niggles become greater as I realize what is
going on. I also know I have to stop
those same niggles from overwhelming my emotional status and becoming the
Himalayas! Just so very, very hard to
do! Persevere I hear you all say, and
persevere I shall, even if I do have a few strops along the way J
Here’s hoping you all have lovely
a Saturday (or Sunday for you Antipodeans).
HUGZ x
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